HENSLEY HOPES: Ally Update!

Tuesday, February 16, 2010

Ally Update!

Ally had a little bit of a rough night last night. Around 4 her stats dropped. They changed her settings on the ventilator to help. Her gasses today haven't been that great. She did have a really big day yesterday. They took her off the oscillator and put her back on the ventilator. She seems to like the Oscillator much better. She can't seem to get rid of her CO2 and pee. They are going to start marilax today to help her poop. It has been a roller coaster ride. One moment you think she is doing great and the next she needs improvement. I have also noticed a change in my attitude. I often get very annoyed with other people. Yesterday instead of wanting to chat with family at lunch I wanted to leave. Today I got irritated at someone for coughing in the cafeteria. What is wrong with me? My only wish is that Ally will be out and ok by her Birthday on the 27th. Thanks for all your prayers and thoughts on our behalf. They really do make a difference.

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Established June 15, 2002. Josh and I met at LDS Business College Jan. 28, 2002 in a IT class for dummies. He was actually interested in the blond girl sitting next to me. She however was waiting for a missionary. Then he noticed that I was smart, funny, not to mention I was a red head. We started dating in February. Decided to get married 2 weeks later. Were engaged by March and were married in June. I was 19 and he was just off his mission. We have been through a lot. But we still love each other more and more everyday. I'm so glad he picked me.

Josh grew up in Washington State in a tiny town called Zillah. He is the Youngest of 7 children. His parents both were married and their spouses died. His mom had two boys and a girl. His dad had two girls and a boy. They then married each other and had Josh. He is awesome. He's funny, smart and makes me laugh everyday. He currently works for the state of Utah as a Corrections Officer. He works at the Draper Prison. He is a great provider and does his best. I honestly don't think I could have married anyone better. He keeps me sane. Everyday he shows me how much he loves me with a touch, a smile, a hug. I don't know if anyone else could have put up with me through the years. I love him so much.

Evie Nanette Hensley was born on June 14, 2007. She was 5 lb. 15 oz. and was 19 1/2 inches long. She was born with a birth defect called a Diaphragmatic Hernia. This was a whole in her diaphragm that allowed all of the organs from the bottom half of her body to enter the chest cavity. Her heart, stomach, intestines and liver were all in the top half of her body. This caused one of her lungs to not develop properly. She also received a brain hemorrhage that made in impossible for her to be put on a ECMO machine to help her survive. She returned to our Heavenly Father on June 15, 2007 after 14 hours of life. Our 5th wedding anniversary. We love her and miss her everyday. We can't wait for the day when I will see her again.

Allyson Belle Hensley joined the family on February 27, 2009. She weighed 4 lb. 8 oz. and was 17 1/2 inches long. She also was 6 1/2 weeks early. She like Evie also had a Diaphragmatic Hernia. She was born with only 20% of her diaphragm. She spent 4 months at Primary Children's NICU after birth and 1 month in their PICU a year later. She has had her Hernia repaired three times. We also found out that she only has one kidney. Her right one works wonderfully but she has no left kidney. She was on oxygen and a feeding tube constantly until November 2009 to February 2010 . Friday June 11, 2010 Allyson returned to her Heavenly Father surrounded by loving family. She had a cardiac arrest on Tuesday June 8th and suffered massive brain damage. She was in a coma until Friday when life support was removed. She died peacefully Friday June 11, 2010 at 3:20 p.m. She will be missed by all who knew her. I am so grateful for the time I had with her. I will miss her wonderful smiles in the morning. We love you so much Ally. Forever and Always.

Gracie Lynn Hensley made her grand entrace on July 18, 2011. She weighed 6 lb. 7 oz. and was 21 1/4 inches long. The bigest child we have had so far. She was sceduled to be induced July 18th @ 7:30 am but wanted to come on her own terms. She decided to come earlier at 2:21 am. She was born perfect. No problems with CDH. She did have a bit of Jondas, but is doing fabulous. It has been such a blessing to be able to hold her from birth and be able to take her home after our hospital stay. I can't stop holding her and kissing her. I truely thank Heavenly Father for our wonderful blessing every day.

HENSLEY HOPES

Tuesday, February 16, 2010

Ally Update!

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Evie's CDH Awareness Ribbon

Ally's CDH Awareness Ribbon